Tag Archives: Multiple sclerosis

Diary of a disabled bride

As you’ll know, I got married last July. We had an absolutely amazing day but during the months leading up to the wedding I really struggled. There was nothing out there for brides or grooms with disabilities, nowhere to turn to – and at times it became a very lonely road (see article I wroteContinueContinue reading “Diary of a disabled bride”

Love is…

“15 days to go until you say I do – I bet you’re so excited!” Wedding to-do lists. Wedding magazines. Wedding forums . And then there’s me. Locked out of the wedding world. With a month to go I found myself on the floor, crying with pain that had constantly intensified over two weeks. TakingContinueContinue reading “Love is…”

It’s okay to feel lost

  The words stick in my throat. I can’t find them. I don’t know how to let them escape. And yet if I don’t, they’ll drown me. Just because we don’t speak something, just because we lock it away and keep hoping, it doesn’t make the fear any less real, particularly when that fear isContinueContinue reading “It’s okay to feel lost”

A bump in the road

The silence wraps itself around me a hundred times over. It’s suffocating. I lie still. So so still – not wanting to awaken the monster. My patience is wearing thin. I’m so tired of this. Tired of fighting it. Tired of living with it. Tired of always having to think about it. The pain wasContinueContinue reading “A bump in the road”

The wait

The clock whirs slowly – so so slowly. Tick … tock …. tick! Silence. That long, drawn, aching silence. My mind rushes to fill that space. “You can’t escape me forever,” it whispers. My stomach flips. I’ve struggled to eat all day – the fear pulses through my body – ripping across it in whatContinueContinue reading “The wait”

Ignite your inner warrior

  I’m staring out, watching the world go by. Rushing, racing, living, breathing – life. But I’m struggling. I’m really struggling – struggling to make sense of all this. How this disease can just stomp in and rob you of so much in what seems like a split second. It’s so unfair. Long gone isContinueContinue reading “Ignite your inner warrior”

Acceptance

Ah, there you are. I wondered when you’d show your face again. Clearly we didn’t have enough fun last time. You crept up on me this time though. Not like your last sudden assault 18 months ago. This time you lingered in the shadows, teasing me with strange symptoms that left me doubting myself. ButContinueContinue reading “Acceptance”

Learning to love yourself

I spent most of my life hating my body – hating the way it looked, the way it moved, the way it felt. Then I started running and I thought I’d started a journey to learning to love my body. But I still abused it. I pushed it harder and harder. I could always beContinueContinue reading “Learning to love yourself”

Facing the light

I wrote this post back in December but it’s taken me a while to pluck up the courage to share this. May marks a year since my MS diagnosis and the month of the Pieta House Darkness into Light Walk. I don’t have the words to thank Pieta House for the help they gave meContinueContinue reading “Facing the light”