ireland

Outshining the pain

Frida Kahlo outline with a halo of flowers and the quote “At the end of the day we can survive so much more than we think we can”

You are the first thing I think of in the morning because you are the thing that wakes me in the middle of the night. Pushing through that gap between dusk and dawn. Spotting a weakness in my armour you steal your way in so I always start my day thinking of you, rushing toContinue reading “Outshining the pain”

Fashion is my armour

In an upcoming MS & Me blog for MS Ireland, I talk about what fashion means to me and my identity. You can read the full blog post here. As any of us with a disability know, the fashion and retail industry are paved with issues, from a total lack of accessible clothing to notContinue reading “Fashion is my armour”

Finding hope

I was being acknowledged at last but it was so bittersweet.

The haunting

There she goes… The tightly-bound threads are loosening, unravelling. I’m unravelling. Little by little I’m making less sense of this disease and more sense of the scale of its destruction. I’m angry, sad and hurt. It hurts to look back and think of just how much it’s robbed from me, to watch my ghost laceContinue reading “The haunting”

Diary of a disabled bride

As you’ll know, I got married last July. We had an absolutely amazing day but during the months leading up to the wedding I really struggled. There was nothing out there for brides or grooms with disabilities, nowhere to turn to – and at times it became a very lonely road (see article I wroteContinue reading “Diary of a disabled bride”

Ignite your inner warrior

I’m staring out, watching the world go by. Rushing, racing, living, breathing – life. But I’m struggling. I’m really struggling – struggling to make sense of all this. How this disease can just stomp in and rob you of so much in what seems like a split second. It’s so unfair. Long gone isContinue reading “Ignite your inner warrior”

Where it all began

It took one weekend to change everything. It took me another six months to realise just how much had changed. People say you don’t realise how lucky you are until something goes wrong. I did. Sure, we all lose our way from time to time, but I’d spent the last few years thinking how luckyContinue reading “Where it all began”