You’ve got the power

Every muscle in my body was screaming. Every little negative voice had creeped in. “I can’t do this,” I cried to Niall, my fiancée, as we struggled up the last hill of the 2015 Dublin half marathon. “Yes you can,” he shouted, reminding me of all I’d been through in the last few months –Continue reading “You’ve got the power”

The haunting

There she goes… The tightly-bound threads are loosening, unravelling. I’m unravelling. Little by little I’m making less sense of this disease and more sense of the scale of its destruction. I’m angry, sad and hurt. It hurts to look back and think of just how much it’s robbed from me, to watch my ghost laceContinue reading “The haunting”

Why am I not equal?

I’ve learnt that my biggest issue with using a wheelchair is not that I see myself as disabled, it’s that the outside world is designed in such an inaccessible way that it highlights my disability and sets up barriers for inclusion at every turn. Simply put, by using a wheelchair, you are not considered or treated as equal by society.

Love is…

“15 days to go until you say I do – I bet you’re so excited!” Wedding to-do lists. Wedding magazines. Wedding forums . And then there’s me. Locked out of the wedding world. With a month to go I found myself on the floor, crying with pain that had constantly intensified over two weeks. TakingContinue reading “Love is…”

A bump in the road

The silence wraps itself around me a hundred times over. It’s suffocating. I lie still. So so still – not wanting to awaken the monster. My patience is wearing thin. I’m so tired of this. Tired of fighting it. Tired of living with it. Tired of always having to think about it.