Today is the International Day of Persons with Disabilities and this year it focuses on the leadership and participation of persons with disabilities toward an inclusive, accessible, and sustainable post-COVID-19 world. According to the WHO it’s likely that everyone, yes EVERYONE, will at some point experience a disability of some kind, whether permanent or temporary,Continue reading “In it together?”
Everything from a list of neuro rehab services to self-help tips to help you manage your chronic illness
The theme of this year’s World MS day is connections and could that be any more apt given the current situation? For so many people, Covid-19 has meant a change in the way we live and work. Job losses, reduced hours and working from home. Added financial worries. Loneliness and isolation. A feeling of frustrationContinue reading “Welcome to our normal”
You are the first thing I think of in the morning because you are the thing that wakes me in the middle of the night. Pushing through that gap between dusk and dawn. Spotting a weakness in my armour, you steal your way in so I can always start my day thinking of you, rushingContinue reading “Outshining the pain”
In an upcoming MS & Me blog for MS Ireland, I talk about what fashion means to me and my identity. You can read the full blog post here. As any of us with a disability know, the fashion and retail industry are paved with issues, from a total lack of accessible clothing to notContinue reading “Fashion is my armour”
2019 has been a funny year and as full as challenges as ever. I can’t help but always recap on my MS journey as the curtains close on another year, and each year I look at its difficulties and vow that the new year will be my year, it’ll be the year MS and myContinue reading “Finding my fight”
Every muscle in my body was screaming. Every little negative voice had creeped in. “I can’t do this,” I cried to Niall, my fiancée, as we struggled up the last hill of the 2015 Dublin half marathon. “Yes you can,” he shouted, reminding me of all I’d been through in the last few months –Continue reading “You’ve got the power”
The whirring of machines. The timeless ticking of the clock. The drip-drop of IV lines. The distant buzz of an alarm Waiting for information. Waiting to go home. Always waiting.
I was being acknowledged at last but it was so bittersweet.
There she goes… The tightly-bound threads are loosening, unravelling. I’m unravelling. Little by little I’m making less sense of this disease and more sense of the scale of its destruction. I’m angry, sad and hurt. It hurts to look back and think of just how much it’s robbed from me, to watch my ghost laceContinue reading “The haunting”