Tag Archives: MS

Diary of a disabled bride

As you’ll know, I got married last July. We had an absolutely amazing day but during the months leading up to the wedding I really struggled. There was nothing out there for brides or grooms with disabilities, nowhere to turn to – and at times it became a very lonely road (see article I wroteContinueContinue reading “Diary of a disabled bride”

Love is…

“15 days to go until you say I do – I bet you’re so excited!” Wedding to-do lists. Wedding magazines. Wedding forums . And then there’s me. Locked out of the wedding world. With a month to go I found myself on the floor, crying with pain that had constantly intensified over two weeks. TakingContinueContinue reading “Love is…”

A bump in the road

The silence wraps itself around me a hundred times over. It’s suffocating. I lie still. So so still – not wanting to awaken the monster. My patience is wearing thin. I’m so tired of this. Tired of fighting it. Tired of living with it. Tired of always having to think about it. The pain wasContinueContinue reading “A bump in the road”

The wait

The clock whirs slowly – so so slowly. Tick … tock …. tick! Silence. That long, drawn, aching silence. My mind rushes to fill that space. “You can’t escape me forever,” it whispers. My stomach flips. I’ve struggled to eat all day – the fear pulses through my body – ripping across it in whatContinueContinue reading “The wait”

Ignite your inner warrior

  I’m staring out, watching the world go by. Rushing, racing, living, breathing – life. But I’m struggling. I’m really struggling – struggling to make sense of all this. How this disease can just stomp in and rob you of so much in what seems like a split second. It’s so unfair. Long gone isContinueContinue reading “Ignite your inner warrior”

Acceptance

Ah, there you are. I wondered when you’d show your face again. Clearly we didn’t have enough fun last time. You crept up on me this time though. Not like your last sudden assault 18 months ago. This time you lingered in the shadows, teasing me with strange symptoms that left me doubting myself. ButContinueContinue reading “Acceptance”

Bring it on

“We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms – toContinueContinue reading “Bring it on”

A different kind of marathon

One, two, three, four. Step by step the path flew by underneath my feet. In truth it was probably far more sluggish than that, but I hadn’t been out running in two full months so this felt pretty spectacular. Sure, my muscles and my lungs screamed a bit, but not enough to dampen my euphoria.ContinueContinue reading “A different kind of marathon”

Sweet dreams

As the plane descended, I could hardly believe my eyes – the landscape and the scenery was something I thought only existed in picture books. I finally stopped holding my breath. After almost two years of planning, having had to cancel last year’s trip thanks to MS, we’d finally made it to Iceland – andContinueContinue reading “Sweet dreams”