© Rosie Farrell The couch has become my refuge. I live from hospital appointment to hospital appointment – traveling hours to access healthcare thanks to our broken system. My paint brushes taunt me but I know there’s no energy to pick them up, to push through and do the thing I love most. It’s beenContinueContinue reading “The gift”
Tag Archives: Pain
Tread slowly
© Rosie Farrell The words won’t stick. They slide off the page as soon as they land. I’m left wondering what it is I want to say – what it is I need to say. And because I’m not sure, I stop writing and I stop trying to write. For a long time they pooledContinueContinue reading “Tread slowly”
Resources
Everything from a list of neuro rehab services to self-help tips to help you manage your chronic illness
Outshining the pain
You are the first thing I think of in the morning because you are the thing that wakes me in the middle of the night. Pushing through that gap between dusk and dawn. Spotting a weakness in my armour you steal your way in so I always start my day thinking of you, rushing toContinueContinue reading “Outshining the pain”
The haunting
There she goes… The tightly-bound threads are loosening, unravelling. I’m unravelling. Little by little I’m making less sense of this disease and more sense of the scale of its destruction. I’m angry, sad and hurt. It hurts to look back and think of just how much it’s robbed from me, to watch my ghost laceContinueContinue reading “The haunting”
Kiss Goodbye to MS
To the people with MS who are reading this, I want you to know you are not alone. Together, side by side, we stand united in our battle against this cruel disease
Diary of a disabled bride
As you’ll know, I got married last July. We had an absolutely amazing day but during the months leading up to the wedding I really struggled. There was nothing out there for brides or grooms with disabilities, nowhere to turn to – and at times it became a very lonely road (see article I wroteContinueContinue reading “Diary of a disabled bride”
Love is…
“15 days to go until you say I do – I bet you’re so excited!” Wedding to-do lists. Wedding magazines. Wedding forums . And then there’s me. Locked out of the wedding world. With a month to go I found myself on the floor, crying with pain that had constantly intensified over two weeks. TakingContinueContinue reading “Love is…”
It’s okay to feel lost
The words stick in my throat. I can’t find them. I don’t know how to let them escape. And yet if I don’t, they’ll drown me. Just because we don’t speak something, just because we lock it away and keep hoping, it doesn’t make the fear any less real, particularly when that fear isContinueContinue reading “It’s okay to feel lost”
A bump in the road
The silence wraps itself around me a hundred times over. It’s suffocating. I lie still. So so still – not wanting to awaken the monster. My patience is wearing thin. I’m so tired of this. Tired of fighting it. Tired of living with it. Tired of always having to think about it. The pain wasContinueContinue reading “A bump in the road”
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