The haunting

There she goes… The tightly-bound threads are loosening, unravelling. I’m unravelling. Little by little I’m making less sense of this disease and more sense of the scale of its destruction. I’m angry, sad and hurt. It hurts to look back and think of just how much it’s robbed from me, to watch my ghost laceContinueContinue reading “The haunting”

Why am I not equal?

I’ve learnt that my biggest issue with using a wheelchair is not that I see myself as disabled, it’s that the outside world is designed in such an inaccessible way that it highlights my disability and sets up barriers for inclusion at every turn. Simply put, by using a wheelchair, you are not considered or treated as equal by society.

Diary of a disabled bride

As you’ll know, I got married last July. We had an absolutely amazing day but during the months leading up to the wedding I really struggled. There was nothing out there for brides or grooms with disabilities, nowhere to turn to – and at times it became a very lonely road (see article I wroteContinueContinue reading “Diary of a disabled bride”

I do

We finally did it! We got married! Did it go off without any glitches? No. But it was amazing in spite of everything MS tried throwing my way. As I walked down that aisle, I felt like the luckiest person alive and MS wasn’t even in the picture. Thanks to all my amazing friends andContinueContinue reading “I do”

Love is…

“15 days to go until you say I do – I bet you’re so excited!” Wedding to-do lists. Wedding magazines. Wedding forums . And then there’s me. Locked out of the wedding world. With a month to go I found myself on the floor, crying with pain that had constantly intensified over two weeks. TakingContinueContinue reading “Love is…”

It’s okay to feel lost

  The words stick in my throat. I can’t find them. I don’t know how to let them escape. And yet if I don’t, they’ll drown me. Just because we don’t speak something, just because we lock it away and keep hoping, it doesn’t make the fear any less real, particularly when that fear isContinueContinue reading “It’s okay to feel lost”